Siblings Day

Raising PKU and non-PKU siblings under one roof and at one dinner table can have its challenges In honour of Siblings Day, we spoke with Kelly Thompson, Mum to Lily-Mae, 7 and Alan, 8. Lily-Mae has PKU and her big brother Alan was born without the condition. No other members of Kelly’s family have PKU,…

What’s new in PKU?

What’s new in PKU?   Dr Hugh Lemonde, Consultant Paediatrician Evelina London At NSPKU 2019, Dr Hugh Lemonde, Consultant Paediatrician Evelina London, presented on ‘What’s new in PKU?’, specifically delving into the stages of clinical trials and pre-clinical trials. Here’s what we learned…     Phase 4 Trials Pegvaliase Enzyme replacement Therapy Improves control in…

Tips for Travelling with PKU

With summer holidays already in full force in the UK and rapidly approaching for those across the rest of the country, it’s a good time to talk about travelling with PKU. PKU adds an extra layer to preparing for a family holiday, but it doesn’t mean that you can’t have a fantastic time with a…

Recipe: Milanese Risotto

Serves 2 Ingredients 800ml stock – vegetable and chicken stock combined using Knorr Stock Pots Saffron 5 Shallots, finely chopped 2 tsp butter or oil Your favourite low protein rice – about half a box Dash of white wine/masala cooking wine Suitable vegan cheese – to taste Method Bring the stock to the boil with…